My Darling Patrick!! Sending you boatloads of love from the coast of Maine. I was just in Jackson Hole this month and these are two pics I took and knew they would put a smile on your face! This is truly a face only a mother could love! You are in my heart to stay! Love you, Joanie
Sunday, May 2, 2010
Day -3
Patrick started his immune suppressant therapy today. It's a combination of drugs called Tacrolimus and Sirolimus that will help prevent graft vs host disease when he receives his transplant.
His doctors are monitoring his white blood cell count, blood platelets and hemoglobin levels. These values will be dramatically decreasing over the next 72 hours in preparation for his transplant on Wednesday.
Patrick is doing well. He says he's, "Hangin' in there!" He surprised his nurses today by walking out to the lobby and soaking up a little sun by the windows. After his chemo, they didn't expect him to be getting out of bed at all! My Hero!
His doctors are monitoring his white blood cell count, blood platelets and hemoglobin levels. These values will be dramatically decreasing over the next 72 hours in preparation for his transplant on Wednesday.
Patrick is doing well. He says he's, "Hangin' in there!" He surprised his nurses today by walking out to the lobby and soaking up a little sun by the windows. After his chemo, they didn't expect him to be getting out of bed at all! My Hero!
Saturday, May 1, 2010
Day -4
Today was a rough day. Patrick had his four hour chemo infusion and his conditioning is now complete. He's exhausted. He slept most of the afternoon but he is doing very well. He'll have intravenous nutrition starting tonight to keep his weight up. His taste buds are all screwy and everything tastes bad...his favorite chewing gum tastes like play dough. Fortunately this is only temporary.
Now, a little channel surfing and then off to bed.
Oh! Patrick's cousin Fran shared something funny with me...Some of you may know that today was the Kentucky Derby. Well, there was a horse called "Paddy O'Prado" in the race! And he finished in 3rd place! Good job Papa!
Buenas noches!
Now, a little channel surfing and then off to bed.
Oh! Patrick's cousin Fran shared something funny with me...Some of you may know that today was the Kentucky Derby. Well, there was a horse called "Paddy O'Prado" in the race! And he finished in 3rd place! Good job Papa!
Buenas noches!
Friday, April 30, 2010
Day -5
Patrick had his last two radiation treatments today. So glad that's done! He's doing very well...some nausea but the meds took care of that. He has a four hour chemo infusion tomorrow at 10am so please, everyone, send some good vibes this way that he will tolerate it well.
Patrick's brother Seamus was in to COH today to start his preparations. He had his first two, of eight, Neupogen injections. The Neupogen will stimulate production of the stem cells that will be collected from Seamus and introduced into Patrick's system. These stem cells will grow into Patrick's new bone marrow and immune system.
I know I've said this before and I'll say it again and again, thank you all so much for your prayers, support, positive energy and intentions. They make all the difference!
Gracias!
Patrick's brother Seamus was in to COH today to start his preparations. He had his first two, of eight, Neupogen injections. The Neupogen will stimulate production of the stem cells that will be collected from Seamus and introduced into Patrick's system. These stem cells will grow into Patrick's new bone marrow and immune system.
I know I've said this before and I'll say it again and again, thank you all so much for your prayers, support, positive energy and intentions. They make all the difference!
Gracias!
Thursday, April 29, 2010
Day -6

The view of Beautiful, snow capped, Mt. Baldy from Patrick's room
Great day today! I can't believe Patrick's conditioning is almost complete. I'm so proud of him. He's doing so well!
Patrick's room is about 1/4 mile's walk from the radiation clinic. Porters come, armed with a wheel chair, to take him back and forth to his appointments. Well, today, Patrick decided he'd like to walk. So he did. He walked back and forth to all of his treatments. Porters following along behind him, pushing an empty wheel chair. That's our Patrick!
His radiation treatments are a full body exposure of about 15 minutes per session. He has to stand perfectly still during the treatments. Special, custom made, shields are used to protect his lungs. Yesterday and today, in addition to his full body treatments, he received targeted, depth specific, radiation to treat his ribcage (front and back).
Now it's time for turkey and stuffed potato dinner, washed down with a little Modern Marvels on The History Channel.
Buenas noches!
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